Towards more comprehensive nationwide familial aggregation studies in Denmark: The Danish Civil Registration System versus the lite Danish Multi-Generation Register
Research output: Contribution to journal › Journal article › Research › peer-review
Standard
Towards more comprehensive nationwide familial aggregation studies in Denmark : The Danish Civil Registration System versus the lite Danish Multi-Generation Register. / Due, Jeppe Klok; Pedersen, Marianne Giørtz; Antonsen, Sussie; Rommedahl, Joen; Agerbo, Esben; Mortensen, Preben Bo; Sørensen, Henrik Toft; Lotz, Jonas Færch; Piqueras, Laura Cabello; Fierro, Constanza; Karamolegkou, Antonia; Igel, Christian; Rust, Phillip; Søgaard, Anders; Pedersen, Carsten Bøcker.
In: Scandinavian Journal of Public Health, 2024, p. 1-11.Research output: Contribution to journal › Journal article › Research › peer-review
Harvard
APA
Vancouver
Author
Bibtex
}
RIS
TY - JOUR
T1 - Towards more comprehensive nationwide familial aggregation studies in Denmark
T2 - The Danish Civil Registration System versus the lite Danish Multi-Generation Register
AU - Due, Jeppe Klok
AU - Pedersen, Marianne Giørtz
AU - Antonsen, Sussie
AU - Rommedahl, Joen
AU - Agerbo, Esben
AU - Mortensen, Preben Bo
AU - Sørensen, Henrik Toft
AU - Lotz, Jonas Færch
AU - Piqueras, Laura Cabello
AU - Fierro, Constanza
AU - Karamolegkou, Antonia
AU - Igel, Christian
AU - Rust, Phillip
AU - Søgaard, Anders
AU - Pedersen, Carsten Bøcker
PY - 2024
Y1 - 2024
N2 - Aim:Linking information on family members in the Danish Civil Registration System (CRS) with information in Danish national registers provides unique possibilities for research on familial aggregation of diseases, health patterns, social factors and demography. However, the CRS is limited in the number of generations that it can identify. To allow more complete familial linkages, we introduce the lite Danish Multi-Generation Register (lite MGR) and the future full Danish MGR that is currently being developed.Methods:We generated the lite MGR by linking the current version of the CRS with historical versions stored by the Danish National Archives in the early 1970s, which contain familial links not saved in the current CRS. We describe and compare the completeness of familial links in the lite MGR and the current version of the CRS. We also describe planned procedures for generating the full MGR by linking the current CRS with scanned archived records from Parish Registers.Results:Among people born in Denmark in 1960 or later, the current CRS contains information on both parents. However, it has limited parental information for people born earlier. Among the 732,232 people born in Denmark during 1950–1959, 444,084 (60.65%) had information on both parents in the CRS. In the lite MGR, it was 560,594 (76.56%).Conclusions:The lite MGR offers more complete information on familial relationships than the current CRS. The lite and full MGR will offer an infrastructure tying together existing research infrastructures, registers and biobanks, raising their joint research value to an unparalleled level.
AB - Aim:Linking information on family members in the Danish Civil Registration System (CRS) with information in Danish national registers provides unique possibilities for research on familial aggregation of diseases, health patterns, social factors and demography. However, the CRS is limited in the number of generations that it can identify. To allow more complete familial linkages, we introduce the lite Danish Multi-Generation Register (lite MGR) and the future full Danish MGR that is currently being developed.Methods:We generated the lite MGR by linking the current version of the CRS with historical versions stored by the Danish National Archives in the early 1970s, which contain familial links not saved in the current CRS. We describe and compare the completeness of familial links in the lite MGR and the current version of the CRS. We also describe planned procedures for generating the full MGR by linking the current CRS with scanned archived records from Parish Registers.Results:Among people born in Denmark in 1960 or later, the current CRS contains information on both parents. However, it has limited parental information for people born earlier. Among the 732,232 people born in Denmark during 1950–1959, 444,084 (60.65%) had information on both parents in the CRS. In the lite MGR, it was 560,594 (76.56%).Conclusions:The lite MGR offers more complete information on familial relationships than the current CRS. The lite and full MGR will offer an infrastructure tying together existing research infrastructures, registers and biobanks, raising their joint research value to an unparalleled level.
U2 - 10.1177/14034948221147096
DO - 10.1177/14034948221147096
M3 - Journal article
C2 - 37036022
SP - 1
EP - 11
JO - Scandinavian Journal of Public Health, Supplement
JF - Scandinavian Journal of Public Health, Supplement
SN - 1403-4956
ER -
ID: 342667111